Grace, Grief, & Grit: Voices of the EB Community

Behind every case of Epidermolysis Bullosa is a person - a child, a sibling, a fighter, a family, and sometimes, an angel. Here, we honor all of their journeys. These are stories of unimaginable pain met with unwavering strength, fragile skin, and unbreakable spirits. Through their voices, we find connection, courage, and the heart of why we fight for a future without EB.

In Loving Memory Of

Sophie Grace Ramsey

In Loving Memory Of

Caroline Georgia Mitchell

In Loving Memory Of

Elliana Rose Campbell

In Loving Memory Of

Edward William Harris

In Loving Memory Of

Frank Evert Borg Landin

In Loving Memory Of

Wesley Tyler Stone

Annie & Brooks Kendricks

Hodges Caldwell Jr

Kendall & Jackson Teague

Jonah Williams

Al, Rob, & Walker Cantrell

Hayley Winder

In Loving Memory Of

Grace Randee Erin Moreland

Brooklyn

Lilah Miller

Ariana Covarrubias